Young man shares his battle with a rare skin condition after using steroid cream to relieve his eczema

A healthy young man has become unable to take care of himself after suffering from a unique out of control skin disease.

Earth Hendey, from northern New South Wales, has been experiencing ‘Topical Steroid Withdrawal’ (TSW) due to overuse of steroid cream for 20 years to relieve his eczema, leaving his skin incredibly flaky.

As his skin heals, the 26-year-old avoids walking in the sun, constantly wears long-sleeved clothes and is unable to bathe himself.

Jordan told FEMAIL that he chose to stop using the doctor-recommended cream before Christmas, and now his skin is constantly itchy and irritating in trying to heal itself without moisture.

Topical steroid withdrawal is a term used to describe the collection of symptoms that occur after a person stops using long-term topical steroid medication.

Scroll down for video

Earth Hendey, from Northern New South Wales, (pictured) has been experiencing Topical Steroid Abstinence (TSW) due to overuse of steroid cream for 20 years to relieve his eczema, leaving his skin incredibly scaly

Earth Hendey, from Northern New South Wales, (pictured) has been experiencing Topical Steroid Abstinence (TSW) due to overuse of steroid cream for 20 years to relieve his eczema, leaving his skin incredibly scaly

Jordan told FEMAIL that he chose to stop using the doctor-recommended cream before Christmas, and now his skin is constantly itchy and irritating, trying to heal itself without moisture.

Jordan told FEMAIL that he chose to stop using the doctor-recommended cream before Christmas, and now his skin is constantly itchy and irritating, trying to heal itself without moisture.

The 26-year-old avoids walking in the sun, constantly wears long-sleeved clothes and cannot bathe himself due to the sensitivity of the skin

The 26-year-old avoids walking in the sun, constantly wears long-sleeved clothes and cannot bathe himself due to the sensitivity of the skin

Jordan, a marketing agency owner, has been battling eczema since he was a child, and as he got older, it started spreading across his body.

While doctors constantly said he simply wanted to ‘grow out of it’, he said this never happened.

“I was confused as to why my eczema did not go away and I was not aware of what was going on until five years ago,” he said.

‘It was getting worse all the time and my lifestyle was getting harder and harder – anything outdoors like going to the beach or camping was a nightmare.’

In 2016, as a 20-year-old, he realized that the reason his skin was getting worse was due to the addiction to steroid cream.

Doctors recommended using the cream until the eczema disappeared, and then continuing to use for 14 days to push the inflammation down into the skin.

In 2016 at the age of 20, he realized that the reason his skin was getting worse was due to the dependence on steroid cream

In 2016 at the age of 20, he realized that the reason his skin was getting worse was due to the dependence on steroid cream

When he was 20, he stopped using the medicine only to find that his skin turned pink overnight.

In March 2016, he visited a naturopath who advised to have a blood sample taken to test for any parasites in his body, but doctors found something more sinister.

“Late one Saturday night, I received a random phone call and thought it was my brother, but it was the doctors who told me I was going to a hospital as soon as possible,” he said.

‘I asked if it could wait until tomorrow, but they said it was an emergency.’

The test detected two blood infections due to his delicate skin, even though he had no symptoms and ‘felt fine’.

“It was incredibly scary, I could have died of it, and I was on the drip for about a month later,” he said.

Jordan says it's a nightmare to participate in outdoor activities, such as camping or going to the beach

Jordan says he 'feels like a baby again' as his fiancée, Karys, has become his caregiver, bathing him and helping him change

Jordan says he ‘feels like a baby again’ as his fiancée, Karys, (pictured, right) has become his caregiver, bathing him and helping him change

What is Topical Steroid Withdrawal (TSW)?

Topical steroid withdrawal refers to a constellation of symptoms that may appear in the days and weeks after a person stops using topical steroid medication.

Most people with eczema use topical steroids to help manage their symptoms

For some, TSW can occur as a complication of topical steroid use, even leading to symptoms that are significantly worse than their original skin condition.

Source: nationaleczema.org

During the two weeks in the hospital, the doctors convinced Jordan to start using steroid cream again, and after a week, the skin was relieved.

“I was brought to tears after being told that it can take two to five years to get me over TSW,” he said.

Jordan felt at its lowest point, as if ‘there was no light at the end of the tunnel’.

When he wanted to find a better alternative, he started searching the internet for others who had experienced the same thing.

But then he came across a treatment called ‘no moisture therapy’ developed by the Japanese dermatologist Dr. Kenji Sato.

The treatment aims to renew the skin by drying it out by not using moisturizer or steroids and reducing water intake.

“At first, I thought it was totally crazy not to apply moisturizer on my dry skin and not drink water,” he said.

During the course of his research, he discovered that others have previously recovered from TSW within three months using the therapy technique.

“Three months compared to five years of recovery time – I thought it was a no-brainer to try it out,” he said.

Jordan said the worst parts of his body that have been affected by TSW are his knees, legs, arms and back, while his chest and face are recovering.

Jordan said the worst parts of his body that have been affected by TSW are his knees, legs, arms and back, while his chest and face are recovering.

Jordan said the worst parts of his body that have been affected by TSW are his knees, legs, arms and back, while his chest and face are recovering.

Ironically, non-flagged parts have been where his eczema used to occur as a child – his armpits and elbows.

Jordan says he ‘feels like a baby again’ because his fiancée, Karys, has become his caregiver, who bathes him and helps him change.

‘I can not do anything; I can not stand for very long and avoid going outside, “he said.

Currently, Jordan is taking it day by day, hoping for a speedy recovery.

.

Give a Comment